This 5-year-old girl’s words are heartfelt. “I know I only have a short time left to live, but…”

Children can be stronger than all adults at times. Jule’s story is a typical example. Jule is five years old, but she can barely walk. She has pain all over her brain, but she still smiles and plays with the other kids. Every day, a genetic defect weakens her.

Jule from Hamburg can only walk a few meters before her legs start to grow. She can’t even wash her own teeth, she’s losing weight every day, but she still has the ability to laugh. There are only 60 children worldwide who have SMARD. This disease has no treatment, therapy, or cure.

She’ll be so frail that I won’t be able to breathe one day. know what’s going to happen to me. But if I cry, I won’t be happy at all; instead, I’ll laugh to be happy for mom and dad for the rest of my life, and you, too, will live laughing. I know I only have a few minutes left, so I’m going to laugh and play. Please tell your friends about this story.

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